Time has slowed since my treatment in July. I've battled back-to-back bladder infections (thankfully halted by my neurologist's prescription for a daily antibiotic for three months), a severe muscle tear that flattened me for at least two weeks and made me relearn to walk and recondition from scratch, almost daily breaking news events that needed broadcasting to the online community, our Victoria information session with 275 people attending, and so much more.
Personally, I struggled to deal with the return of leg spasms for the first time since my treatment. Even though they were minutes (or less) long and not painful as much as a bother, I couldn't help but feel they could return to the daily agony I endured for hours at a time for years. I panicked, sort of, and contacted my angioplasty doctor in Albany, NY.
Let me just say how wonderful it is to have a doctor that answers my email within hours.
Anyway, on his suggestion, I returned to False Creek for a follow-up ultrasound in September. I was fortunate back in March that both my jugular veins showed clear problems on my ultrasound that were confirmed (and treated) during angioplasty. These problems were that my right jugular didn't flow properly when I was lying down; my left one didn't flow, or even empty, when I was sitting up.
I was optimistic my repeat ultrasound would show me how my veins had changed. I know the continuing benefits of no swallowing difficulties and greatly reduced spasms are a result of my angioplasty. At least an ultrasound would confirm the flow problems in my jugulars were fixed. As for my azygous, which had 5 stenoses, because it isn’t picked up well on a scan I choose to believe my five blockages there remain fixed.
So, onto the ultrasound! First, my left jugular was scanned lying down. Flow normal (as it was before). Now my right -- flow normal! The angioplasty worked! You can even see the footprint of the balloon on the endothelial lining...just fascinating! The doctor said he investigated this when he first saw it and the fuzzy walls are normal following a venous angioplasty.
With the ultrasound still on my right, the doctor scanned me sitting up. He confirmed my right was still normal. Now, when I’m still sitting, he scans the left... To my initial dismay he confirmed I still had the same flow problem as before. We tried a few times with me alternating between lying down and sitting up. Each time I sat up, the vein did not collapse and the blood remained at a near standstill in my vein. This is not normal!
Here's my right when I'm sitting up -- the black dot shows my artery open (as it should be) and the jugular collasped (as it should be).
And here's the left -- two black dots equals both an artery and a jugular vein filled with blood. Trouble is, the blood in the vein isn't supposed to be there (and it's not moving very much).
The doctor speculated the vein could be folding or obstructed on the outside by something. I recall the x-ray of this stenosis taken when my vein was angioplastied. Could my stenosis have been scar tissue from repeated pinching every time my head was upright? There's bone right at the point of the stenosis and muscle too -- maybe they are obstructing my vein somehow when I sit up?
Stretching scar tissue won't make the cause of the scarring disappear. I need to see a surgeon. Angioplasty won't fix this.
Trouble is, I live in Canada and vascular surgeons are wary of seeing anyone with MS. This is my next battle in my ongoing fight for my optimal health.
In the meantime, since my muscle injury, the spasms have disappeared 99% again. I am so delighted and feel so very fortunate to have been angioplastied. I know my left jugular will eventually get fixed and there's even more possibility for improvement.
In the meantime, I continue the fight to bring treatment to Canada. Those of us with strong voices must speak for those who cannot. It's a battle we can't afford to lose.
Hi, I'm Sandra's left jugular vein and, along with her right jugular and azygous veins, this is our story about Sandra's life now that we are fixed. Sandra's interest in us began in November 2009. She wanted to know what other patients knew about CCSVI. So, she started a Facebook page called "CCSVI at UBC MS clinic." People who share Sandra's thirst for information now go there to collect, share, and discuss developments in CCSVI. As veins, we love being the centre of all this attention!
Have you read about Serrapeptase? Claims to break down scar tissue.[url]http://www.serrapeptase.info/[/url]
ReplyDeleteJoan Beal also talks about it on the CCSVI Alliance website under Helping Myself Endothelial Health [url]http://www.ccsvi.org/[/url]
How are you Sandra??
ReplyDeleteDid you need to go back?
Have you gone to Pacific Interventalists in Costa Mesa California?
Bill Code on the Island went there and he has had some pretty amazing results.
Cheers to you
Ruth-Ann
My friend suggested me
ReplyDeleteGetting Rid of Stretch Marks with Microdermabrasion will it be good for me ... will it be ok for a dark skin please let me know
thank you
I'm 47 years old and female. I was diagnosed a couple of years ago with COPD and I was beyond scared! My lung function test indicated 49% capacity. After having had the flu a year ago, the shortness of breath, coughing and chest pains continued even after being treated with antibiotics. I've been smoking two packs a day for 36 years. Being born without a sternum caused my ribs to be curled in just one inch away from my spine, resulting in underdeveloped lungs. At age 34 I had surgery and it was fixed. Unfortunately my smoking just caused more damage to my already under developed lungs. The problem was that I enjoy smoking and don't want to give up! Have tried twice before and nearly went crazy and don't want to go through that again. I saw the fear in my husband and children's eyes when I told them about my condition then they started to find a solution on their own to help my condition.I am a 47 now who was diagnosed with COPD emphysema which I know was from my years of smoking. I started smoking in school when smoking was socially acceptable. I remember when smoking was permitted in hospitals. It was not known then how dangerous cigarettes were for us, and it seemed everybody smoked but I was able to get rid of my COPD lung condition through the help of Dr Akhigbe total cure herbal medicine. My husband saw his testimony on the internet that he used his powerful medicine to cure different diseases. We contacted his email [drrealakhigbe@gmail.com} He has the right herbal formula to help you get rid and repair any lung conditions and other diseases, will cure you totally and permanently with his natural organic herbs,We received the medicine through courier delivery service. I wish anybody who starts smoking at a young age would realize what will eventually happen to their bodies if they continue that vile habit throughout their life.
ReplyDeleteDr Akhighe also cured diseases like, HERPES, DIABETES, HIV/AIDS, COPD, CANCER,ASTHMA,STROKE,LUPUS,JOINT PAIN,CHRONIC DISEASES,PARKINSON DISEASES,TUBERCULOSIS,HIGH BLOOD PRESSURE,BREAST INFECTION,WOMEN SEXUAL PROBLEM, GINGIVITIS, ERYSIPELAS,STAPHYLOCOCCUS,HEPATITIS A/B, QUICK EJACULATION, IMMUNOTHERAPY, GONORRHEA,SYPHILIS,WAST/BACK PAIN,PELVIC INFLAMMATORY, DICK ENLARGEMENT,HEART DISEASES,TERMINAL ILLNESS,SHIFT IN FOCUS,ATAXIA,COMMON COLD,CROHN'S DISEASES,ALCOHOL SPECTRUM DISORDER,GRAVES DISEASE,HEARING LOSS, INTERSTITIAL CYSTITIS,LEUKEMIA,MULTIPLE SCLEROSIS,OBESITY,RABIES,SCOLIOSIS,INFLUENZA, POLIO,JACOB,ETC. If you are out there looking for your cure please contact dr Akhigbe by his email drrealakhigbe@gmail.com or contact his whatsapp number +2349010754824
God bless you Dr Akhigbe for your good hand work on my life.